Welcome to a view of my world living with Fibromuscular Dysplasia aka FMD.

I’m a 58 years old who had symptoms for years but never really knew why til now.

Not to bore you, I will get to my accidental diagnosis and why I wanted to document my journey in hopes it helps someone else who is newly diagnosed, been living with the disease and looking for information.

I’ve been a chronic migraine sufferer since I was 33 years old (the year of 2000). Won’t go into that freakin nightmare that was but as the years went by, I was able to figure out the “signs” of my body of when I had a migraine coming….

1. I could hear my heartbeat in my ear-whooshing sound
2. I had sensitivity on the top of my head by touching with my hand/fingers
3. Starting of a headache
4. Nausea
5. Shaky Blood as I call it. Meaning I felt inside my body this shaky feeling but on the outside, I look normal.

I try to head off the migraine with Tylenol or my migraine medicine Amerge and Zofran (for nausea). basically bedridden for a year and basically lost 24 years of my life because of the migraine attacks, the pain, vomiting and days after the attack were just as bad. And that’s not including how I felt when some people didn’t believe me when I said I had a migraine. Like it was some bad headache. It was more than that. It was absolutely terrible and I’m glad they didn’t know what it felt like, they are blessed.

Migraines are very debilitating.

Fast forward now and I’m 58 Years old (2026) and in December 2025 I was taking a bath when all of a sudden, the bathroom starting spinning badly on me, I had a second to think that I have to get out of the tub or I may pass out and drown so I threw myself out of the tub on the floor, got bruises but didn’t drown. 4 days later, my right hand turned numbed, 2 hours later still numbed so went to ER where 6 hours later, my hand finally started to get the feeling back, found out I had a TIA and diagnosed Fibromuscular Dysplasia.

It’s in my left renal, left and right carotid (right being the worse).

The beginning of living with a disease I never knew I had, but it did help put the puzzle together.

A new life begins filled with new worries, new life changes, and a new sense that I will live with this disease my way, ironing out what I can and can’t do and eventually eliminate my worries and find peace in my everyday life.